Do your own research
An internet resource one can use to gain an appreciation of research conducted around the world that is specific and/or related to Rett syndrome, is pubmed, the website address of which is http://www.ncbi.nlm.nih.gov/pubmed
Upon opening the pubmed home page, just type in the words Rett syndrome in the box next to the search button, then click on that button. What results is a list containing title, author and source, of articles that refer to the syndrome. In most instances, the reference will be a summary or abstract of the research undertaken. However, on occasions, an entire article can be viewed.