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Emma

Posted by Rett Syndrome Association of Australia in

At left: Emma aged 3 years 6 months, 1987 For the past 30 years, our precious ‘Angel’ Emma, has patiently and silently, but not always so quietly, taught her family many valuable life lessons about patience, tolerance, values, and what’s important and definitely what’s not! She was…

Alana

Posted by Rett Syndrome Association of Australia in

My beautiful baby girl Alana was born in 1983 with her first 10 days of life being spent in hospital as she had difficulty with feeding and gaining weight. Over the next 12 months, she was in and out of hospital because of poor feeding…

Eva

Posted by Rett Syndrome Association of Australia in

Our daughter Eva is 6 1/2 years old and is in grade one at a mainstream school. If someone had told me when Eva was 6 months old that this is where she would be at 6 years of age, I probably would have shrugged…

Jovie

Posted by Rett Syndrome Association of Australia in

In May 2009, our daughter Jovie was born in Sydney Australia. Like many people, we were completely unaware of Rett syndrome until we started seeing the early signs of the disorder around the time Jovie was 10-12 months old. Making notes with our general practitioner…