Each of the following events is Rett syndrome-related i.e., it includes a focus on the syndrome, regardless of what the extent of that focus is.
19-21 November 2015 Geelong, Victoria First RSAA National Conference
Venue: Novotel Geelong Conference theme: “The Rett Syndrome Journey: Pathways to Follow”
Additional information about this event (including videos of most sessions) can be found on this website by clicking on the ‘About Rett syndrome’ tab above, then choosing ‘Selected resources specific to Rett syndrome’.
13-17 May 2016 Kazan, Russia 8th World Congress on Rett Syndrome
RSAA was represented by its Vice-President Claude Buda and Committee member Tony Cagliuso. Further information about the Congress can be obtained by clicking on the following link http://www.worldcongress2016.rettsyndrome.ru/
Below left: World Congress - Kazan, Russia - May 2016 Olga Timutsa (President of the Russian Rett Syndrome Association (second from right) with, at far left, Nasim Bahran (Children's Hospital, Westmead, Sydney), Tony Cagliuso (RSAA), Helen Leonard (Australian Rett Syndrome Study) and Claude Buda (RSAA)
27 May 2016 Brisbane, Queensland “Learning and Communication Strategies in Rett Syndrome” Susan Norwell (USA)
Venue: Brisbane International, Boondall.
An appreciation of what Susan is about can be gained by accessing Susan Norwell Professional Development
Information on how to obtain DVDs of Susan’s presentations is available on this website by clicking on the ‘About Rett syndrome’ tab above, then choosing ‘Selected resources specific to Rett syndrome’.
15-17 September 2016 Vienna, Austria RTT50.1
Venue: Juridicum, Vienna.
Celebrating the 50th anniversary of the first publication on Rett syndrome by Dr Andreas Rett, the meeting in Vienna reviewed research (both past and present) and existing knowledge of the disorder. RSAA was represented by its President Bill Callaghan, Vice-President Claude Buda and Committee member Sue Hallenstein.
2 July 2017 Healesville, Victoria Big Screen Charity Gala
Venue: Memo Hall, Healesville.
Approximately 200 people attended the screening of the acclaimed documentary “The Eagle Huntress“, an occasion organised by Shelley and Peter Morley in memory of their Rett syndrome daughter Ella and as a fundraiser for the Rett Syndrome Association of Australia. Ella, who passed away in 2008, would have been 21 in July 2017.
23 September 2017 Sunshine West, Victoria 2016/17 RSAA annual general meeting
Venue: Global Food Equipment, Sunshine West, Melbourne.
Guest speaker: James Shaw (Vice-President, Clinical Operations, Neuren Pharmaceuticals)
Topic: Trofinetide: The Journey to Phase III.
8 October 2017 Kambah, Australian Capital Territory Rett syndrome gathering
Venue: Kambah Park, Canberra.
2-4 November 2017 Berlin, Germany 5th European Rett Syndrome Congress
Venue: Vienna House Andels, Berlin. RSAA was represented at the Congress by its Vice-President Claude Buda.
Pictured below: Claude (at left), Paige Nues (rettsyndrome.org) (USA) and Walter Kaufmann (Boston Children's Hospital)
A copy of the Congress programme can be viewed by clicking on http://www.rett2017.berlin
19 November 2017 Glen Waverley, Victoria Rett syndrome gathering
Venue: GlenAllen School, Glen Waverley, Melbourne.
19 November 2017 Penrith, New South Wales Rett syndrome gathering
Venue: Tench Reserve, Penrith.
3 December 2017 Semaphore, South Australia Rett syndrome gathering
Venue: Semaphore Carousel, Semaphore, Adelaide.
6 May 2018 Glen Waverley, Victoria Rett syndrome gathering
Venue: Glenallen School, Glen Waverley, Melbourne.
20 May 2018 Wellington Point, Queensland Rett syndrome gathering
Venue: Redlands Sports Club, Wellington Point, Brisbane.
27-29 September 2018 Rome, Italy ‘Rett Syndrome Research, Towards the Future’
Venue: H10 Hotel, Via Amedeo Avogadro 35, Rome.
RSAA is being represented at this meeting by its Treasurer, Tony Cagliuso.
Sunday 14 October 2018 Carina, Brisbane Book launch of Samantha Wheeler’s novel ‘Everything I’ve Never Said’
Venue: Carina Leagues Club, 1390 Creek Rd, Carina. Time: 11am – 1pm.
‘Everything I’ve Never Said’ is the 6th novel by children’s author Samantha Wheeler. Her youngest daughter, Charlotte, is 21 years old , has Rett syndrome and is the inspiration for this novel. The story concerns Ava who has the syndrome and who seeks to be heard.
Interested persons are welcome to come along with the Club having access and parking for the disabled. If you do wish to attend, please let Samantha know on email@example.com by 7 October.