Each of the following events is Rett syndrome-related i.e., it includes a focus on the syndrome, regardless of what the extent of that focus is.
19-21 November 2015 Geelong, Victoria First RSAA National Conference
Venue: Novotel Geelong Conference theme: “The Rett Syndrome Journey: Pathways to Follow”
Additional information about this event (including videos of most sessions) can be found on this website by clicking on the ‘About Rett syndrome’ tab above, then selecting ‘Selected resources specific to Rett syndrome’.
13-17 May 2016 Kazan, Russia 8th World Congress on Rett Syndrome
Further information about the Congress can be viewed by clicking on the following link http://www.worldcongress2016.rettsyndrome.ru/
Below left: World Congress - Kazan, Russia - May 2016 Olga Timutsa (President of the Russian Rett Syndrome Association (second from right) with, at far left, Nasim Bahran (Children's Hospital, Westmead, Sydney), Tony Cagliuso (RSAA), Helen Leonard (Australian Rett Syndrome Study) and Claude Buda (RSAA)
27 May 2016 Brisbane, Queensland Susan Norwell (USA) presents “Learning and Communication Strategies in Rett Syndrome”
Venue: Brisbane International, Boondall.
An appreciation of what Susan is about can be gained by accessing Susan Norwell Professional Development
15-17 September 2016 Vienna, Austria RTT50.1
CELEBRATING the 50th anniversary of the first publication on Rett syndrome by Dr Andreas Rett, the meeting in Vienna reviewed “Where are we right now?” in terms of research (past and present) and overall knowledge of the disorder.
15 October 2016 Perth, Western Australia Rett syndrome gathering and dinner
Gathering – ‘Mandoon Estate’, Swan River Valley, Perth.
Dinner – ‘Modo Mia Italian’ restaurant, The Burswood, Perth.
Saturday 18 March 2017 Semaphore, South Australia Rett syndrome gathering
Venue: Semaphore Carousel, Adelaide.
Eleven Rett syndrome families represented at what was a very successful day.
Sunday 19 March 2017 Deer Park, Victoria Rett syndrome gathering
Venue: Deer Park Club, Melbourne.
Pleasant afternoon enjoyed by members of 10 Rett syndrome families.
Sunday 2 July 2017 Healesville, Victoria Big Screen Charity Gala
Venue: Memo Hall, Healesville.
Approximately 200 people attended the screening of the acclaimed documentary “The Eagle Huntress“, an occasion organised by Shelley and Peter Morley in memory of their Rett syndrome daughter Ella and as a fundraiser for the Rett Syndrome Association of Australia. Ella, who passed away in 2008, would have been 21 in July of this year. A photo of her can be viewed by clicking on the following file Ella 21 flyer a
Saturday 23 September 2017 Sunshine West, Victoria 2016/17 RSAA annual general meeting
Venue: Global Food Equipment, 6 Grace Court, Sunshine West, Melbourne.
Guest speaker: James Shaw (Vice-President, Clinical Operations, Neuren Pharmaceuticals)
Topic: Trofinetide: The Journey to Phase III.
Sunday 8 October 2017 Kambah, ACT Rett syndrome gathering
Venue: Kambah Park, Canberra.
A very sociable number of hours were spent together by seven Rett families from Canberra, the surrounding area and Bombala (Vic). Great turnout!
2-4 November 2017 Berlin, Germany 5th European Rett Syndrome Congress
Venue: Vienna House Andels, Landsberger Allee 106, Berlin.
RSAA was represented at the Congress by its Vice-President Claude Buda.
Pictured below: Claude (at left), Paige Nues (rettsyndrome.org) (USA) and Walter Kaufmann (Boston Children's Hospital)
A copy of the Congress programme can be viewed by clicking on http://www.rett2017.berlin
Sunday 19 November 2017 Glen Waverley, Victoria Rett syndrome gathering
Venue: GlenAllen School, 7 Allen St, Glen Waverley.
Sunday 19 November 2017 Penrith, New South Wales Rett syndrome gathering
Venue: Tench Reserve, Tench Ave, Penrith.
Sunday 3 December 2017 Semaphore, South Australia Rett syndrome gathering
Venue: Semaphore Carousel, 81 The Esplanade, Semaphore.