The Rett Syndrome Association of Australia Inc. (RSAA) is a charity registered with the Australian Charities and Not-for-profit Commission (ACNC).
Over the years, the RSAA has provided support to parents, siblings and carers; organised and funded State-based family gatherings; and financially supported Rett syndrome-specific research and projects. We have also sponsored Australian researchers to attend overseas Rett syndrome conferences to present their findings and work with the rest of the world to facilitate treatments for Rett syndrome. Locally, RSAA promotes community awareness and facilitates Rett syndrome conferences/workshops.
More recently, the Rett Syndrome Association of Australia has provided funding for Australian clinical research on Rett syndrome, at the Children’s Medical Research Institute Sydney, headed by Professor John Christodoulou, and has assisted in its collaboration with the Maastricht University Medical Centre, The Netherlands, to undertake further development on this research. This included sponsoring one of Professor Christodoulou’s understudies, namely, Nasim Sangani, who has relocated to The Netherlands with samples and data for further analysis and development, under the instruction of Professor Curfs, Director Gouverneur Kremers Centrum, a leading professor in Europe on Rett syndrome.
RSAA is currently working on running clinical trials in Australia with an experimental drug to treat aspects of Rett syndrome and is planning to hold further major conferences on the syndrome in the near future.
Over the years, our Association has relied solely on donations, memberships and parent volunteers, to enable us do what we do for Rett syndrome in Australia. We need the ongoing support from individuals, families, communities and businesses, to enable us to carry on.
Please consider recommending to your work place and/or friends to make a donation to the Rett Syndrome Association of Australia Inc, to benefit from a tax deduction. The Rett Syndrome Association of Australia Inc (RSAA) is an Australian approved registered charity and all donations of $2 and over can be claimed as a tax deduction. They can be made –
by direct deposit into our bank account (RSAA’s preferred method), the details of which are:
385 Bourke St, Melbourne.
Account name: Rett Syndrome Association of Australia Inc.
BSB number 063010
Account number 10215821
or by post to RSAA’s postal address
or by clicking on the ‘Donate’ link below to pay by credit card or PayPal.
When making a donation, please advise RSAA of your name and postal/email address so that a tax deductible receipt can be sent to you. Information on how to contact RSAA is shown below. If forwarding an email to RSAA is your preferred method, please include the captcha code, then click on ‘Send’.
Rett Syndrome Association of Australia Inc.
74 Peter St
Victoria, Australia 3216
Mobile (cell) phone
0418 561 796
if calling from outside Australia, dial 011 61 then 418561796.