Rett Syndrome Association of Australia | News



Claude Buda is RSAA’s new President

Posted by Bill Callaghan in News

Claude Buda, father of 8 year old Annelise who has Rett syndrome, was elected to the position of President of the Rett Syndrome Association of Australia (RSAA) at the Association’s annual general meeting which was held in Melbourne. Claude lives in Sydney. Bill Callaghan, who…

May 2016, Brisbane – Presentations and workshops given by Susan Norwell (USA), a specialist on communication in Rett syndrome

Posted by Bill Callaghan in News

Susan Norwell M.A. Special Education, has spent the last 27 years in private practice working primarily with children on the autism spectrum and girls who have Rett syndrome. Her current focus is in teaching literacy skills for children with significant disabilities who are unable to speak, utilising augmentative communication…

Overseas conference representation during 2016 and 2017 – Members of the RSAA Committee attended Rett syndrome conferences in Russia, New Zealand, Austria and Germany

Posted by Bill Callaghan in News

RSAA was represented at the May 2016 World Congress in Kazan, Russia, by its Vice-President Claude Buda and Committee member Tony Cagliuso. Both are fathers who have a daughter with Rett syndrome, Annelise Buda was 6 years old at that time while Raquelle Cagliuso was 23 years of age.                         …

Restraint is a positive intervention in the management of Rett syndrome

Posted by Bill Callaghan in News

Recently, RSAA became aware of a number of Victorian parents who were being advised to stop restraining their Rett syndrome children and adults, as too were carers. As to why this sort of thing is still happening is hard to understand, as splinting, which is the most common  method used in Rett syndrome to manage hand behaviour, is an…