Rett Syndrome Association of Australia | History of RSAA
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History of RSAA

 

1989

Publication of first newsletter and brochure;

Melbourne has its first RSAA-initiated family gathering.

1990

Appointment of contact persons for each State;

Adelaide and Sydney have their first family gatherings.

1991

First involvement in research in conjunction with University of Queensland;

Brisbane has its first family gathering;

1992

First display on the syndrome is presented at the National Autism Conference in Melbourne.

1993

Brochure has its first reprint;

Perth has its first RSAA-initiated family gathering;

Representation at the World Congress on Rett Syndrome in Belgium and the annual conference
of the United Kingdom Rett Syndrome Association in England.

1994

First national Rett syndrome awareness campaign is conducted.

1996

Representation at the World Congress on Rett Syndrome in Sweden.

1997

Tax deductibility granted by the Australian Taxation Office;

Canberra has its family gathering.

1998

An RSAA email address established;

Second reprint of brochure;

Allocation of an Australian Business Number (ABN).

1999

Acquisition and distribution of the first edition of the publication ‘The Rett Syndrome
Handbook’.

2002

Member of the ‘Coalition for the Advancement of Medical Research’.

2004

Partner in the establishment of the ‘Better Health Chanel’ internet facility.

2007

Limited distribution of the 2nd edition of the publication ‘The Rett Syndrome Handbook’.

2008

Representation at Rett New Zealand’s conference in Wellington.

2010

Representation at Rett New Zealand’s conference in Auckland.

2012

Order of Australia Medal awarded to Bill Callaghan, RSAA President;

Representation at the World Congress on Rett Syndrome in New Orleans.

2013

Work commences on the RSAA web site;

Representation at the 3rd European Conference on Rett Syndrome in Maastricht.

2014

RSAA turned 25 years old in July;

Representation at the Rett New Zealand conference which was held in Auckland.

2015

RSAA stages its first national conference in November;

RSAA Committee now includes at least one member from each State;

As at December 2015, the number of Australian Rett syndrome families with whom the Association had established contact since its formation, was 399.

2016

Representation at the World Congress on Rett Syndrome (Kazan, Russia), Rett New Zealand’s bi-annual conference (Auckland) and the RTT50.1 conference in Vienna, Australia. The latter was held to mark the 50th anniversary of Dr Andreas Rett’s first publication about what to be become known as Rett syndrome;