History of RSAA
Publication of first newsletter and brochure;
Melbourne has its first RSAA-initiated family gathering.
Appointment of contact persons for each State;
Adelaide and Sydney have their first family gatherings.
First involvement in research in conjunction with University of Queensland;
Brisbane has its first family gathering;
First display on the syndrome is presented at the National Autism Conference in Melbourne.
Brochure has its first reprint;
Perth has its first RSAA-initiated family gathering;
Representation at the World Congress on Rett Syndrome in Belgium and the annual conference
of the United Kingdom Rett Syndrome Association in England.
First national Rett syndrome awareness campaign is conducted.
Representation at the World Congress on Rett Syndrome in Sweden.
Tax deductibility granted by the Australian Taxation Office;
Canberra has its family gathering.
An RSAA email address established;
Second reprint of brochure;
Allocation of an Australian Business Number (ABN).
Acquisition and distribution of the first edition of the publication ‘The Rett Syndrome
Member of the ‘Coalition for the Advancement of Medical Research’.
Partner in the establishment of the ‘Better Health Chanel’ internet facility.
Limited distribution of the 2nd edition of the publication ‘The Rett Syndrome Handbook’.
Representation at Rett New Zealand’s conference in Wellington.
Representation at Rett New Zealand’s conference in Auckland.
Order of Australia Medal awarded to Bill Callaghan, RSAA President;
Representation at the World Congress on Rett Syndrome in New Orleans.
Work commences on the RSAA web site;
Representation at the 3rd European Conference on Rett Syndrome in Maastricht.
RSAA turned 25 years old in July;
Representation at the Rett New Zealand conference which was held in Auckland.
RSAA stages its first national conference in November;
RSAA Committee now includes at least one member from each State.
Representation at the World Congress on Rett Syndrome (Kazan, Russia), Rett New Zealand’s bi-annual conference (Auckland) and the RTT50.1 conference in Vienna, Australia. The latter was held to mark the 50th anniversary of Dr Andreas Rett’s first publication about what to be become known as Rett syndrome.
Representation at the European Rett Syndrome Congress (Berlin, Germany).
Participation in the clinical trial of the drug Sarizotan in Australia;
Commitment to stage the 9th World Rett Syndrome Congress in Australia in 2020;
Claude Buda is appointed RSAA President, replacing Bill Callaghan who took on the role of Vice-President;
As at December 2018, the number of Australian Rett syndrome families with whom the Association had established contact since its formation, was 450.