Formed in Melbourne in July 1989, the Rett Syndrome Association of Australia Inc. (RSAA) is a not-for-profit organisation which is managed by a Committee of volunteers, most of whom are parents of Rett syndrome children. The Association seeks to enrich the quality of life for persons with the syndrome and their families, and be of assistance to anyone interested in the disorder. July 2014 marked the 25th anniversary of the Association.
Members of the RSAA Committee for the period 1 July 2017 to 30 June 2018 are as follows:
President Bill Callaghan (VIC)
Vice-President Claude Buda (NSW)
Secretary Caroline Dempster (WA)
Treasurer Tony Cagliuso (SA)Family Support Co-ordinator Sue Hallenstein (VIC)
Jayne Bowden (TAS)
Fiona Bell (VIC)
Elizabeth Davies (VIC)
Michelle Denniss (QLD)
Kristy Klingner (SA)
Dagmar Lockwood (SA)
Kirsty Sale (SA) and
Madeleine Saric (VIC).