Rett Syndrome Association of Australia | About RSAA

About RSAA


Formed in Melbourne in July 1989, the Rett Syndrome Association of Australia Inc. (RSAA) is a not-for-profit organisation which is managed by a Committee of volunteers, most of whom are parents of children with Rett syndrome.

The Association seeks to enrich the quality of life for persons with the syndrome and their families, and be of assistance to anyone interested in the disorder. July 2014 marked the 25th anniversary of the Association’s formation.

Members of  the RSAA Committee for the period 1 July 2017 to 30 June 2018 are as follows:


President              Bill Callaghan (VIC)
Vice-President     Claude Buda (NSW)
Secretary              Caroline Dempster (WA) 
Treasurer              Tony Cagliuso (SA)     Assistant Treasurer   Peter Werchon (VIC)   Family Support                                                     Co-ordinator    Sue Hallenstein (VIC)


                Other members:
                Jayne Bowden (TAS)

                Fiona Bell (VIC)

                Elizabeth Davies (VIC)  

                Michelle Denniss (QLD)

                Kristy Klingner (SA)

                Dagmar Lockwood (SA)   

                Kirsty Sale (SA) and

                Madeleine Saric (VIC).





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