Rett Syndrome Association of Australia | How is Rett syndrome treated?

How is Rett syndrome treated?


Presently, there is no cure for Rett syndrome. However, a number of clinical trials involving drugs such as trofinetide and sarizotan, are presently being conducted. In addition, research involving animal models of the syndrome continues to provide insights into possible treatments. 


Management of symptoms of Rett syndrome can include medications for seizures, reflux, breathing problems and mood, and therapies aimed at improving movement and function. The latter include physical and occupational therapy, music therapy, sensory integration, speech therapy, hydrotherapy and horseback riding.


Surgery may be required to remedy curvature of the spine, foot deformities, swallowing difficulties or reflux.