Rett Syndrome Association of Australia | Overseas conference representation during 2016 and 2017 – Members of the RSAA Committee attended Rett syndrome conferences in Russia, New Zealand, Austria and Germany
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Overseas conference representation during 2016 and 2017 – Members of the RSAA Committee attended Rett syndrome conferences in Russia, New Zealand, Austria and Germany

Posted by Bill Callaghan in News 09 Nov 2016

RSAA was represented at the May 2016 World Congress in Kazan, Russia, by its Vice-President Claude Buda and Committee member Tony Cagliuso. Both are fathers who have a daughter with Rett syndrome, Annelise Buda was 6 years old at that time while Raquelle Cagliuso was 23 years of age.                         

Tony can be seen below nursing a Russian Rett syndrome child, in the company of Kathy Hunter (USA) and Claude. Tony, Kathy and Claude

The Committee’s Sue Hallenstein went to Auckland, also in May, for RettNZ’s bi-annual conference and RSAA President Bill Callaghan travelled to Vienna in September of the same year to attend the RTT 50.1 conference which was being staged to celebrate the 50th anniversary of the first publication of Rett syndrome by Dr Andreas Rett. Bill is pictured below talking with Barbara Rett, Andreas’ daughter, during the conference dinner.

barbara-rett-b

The 5th European Rett Syndrome Congress took place in Berlin on 2-4 November 2017, a copy of the programme for which can be found in the ‘Events’ section of this website.

Our Association was represented by its Vice-President Claude Buda pictured below left with Dr Alan Percy (Children’s of Alabama hospital) and at right, with Helen Leonard (at left) and Jenny Downs (both from the Australian Rett Syndrome Study and InterRett) and Walter Kaufmann (Boston Children’s Hospital). ‘Rett Syndrome’ is the title of a recently published book (pictured) and is part of the Clinics in Developmental Medicine Series produced by MacKeith Press. Walter edited the book while Helen and Jenny contributed chapters. 

The reasons for RSAA attending theese events are multiple, namely, to learn, to network, to raise awareness of RSAA and of Rett syndrome in Australia, and to inform. All of these, Claude achieved while he was in Berlin.  

 

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