Rett Syndrome Association of Australia | Successful High Tea held in Perth to fundraise for Rett syndrome research and generate awareness of the condition
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Successful High Tea held in Perth to fundraise for Rett syndrome research and generate awareness of the condition

Posted by Bill Callaghan in News 08 Feb 2015

 

A High Tea for Rett Syndrome was held at the Caversham Marquee, Perth, on 2 November 2014, to raise funds for Rett syndrome research conducted at the Telethon Kids Institute (Perth) and improve awareness of the disorder. Two hundred people, including at least 9 Rett girls, were present. 

Narelle Read, Teresa Pracilio, Melanie Kenneally and Caroline Fitzpatrick, all mothers with a Rett syndrome child, with the support of other family members, actively saw that everything went to plan on the day which is exactly what happened. Around $30,000 was raised, an outcome which befitted the work put in and the energetic and generous support of those in attendance. A video snapshot of proceedings, created by Tonita Photo & Video, can be viewed by clicking on the following link          http://youtu.be/i08LB8HDTWg

A highlight of proceedings was the showing of a video in which Dr Helen Leonard, Principal Researcher for the Australian Rett Syndrome Study, spoke of the work of her team, while parents and siblings spoke of their lives with Rett syndrome. It is a professional production, the comments are relevant and informative, and is a valuable resource on the syndrome, particularly for a family whose young child is just diagnosed. The video can be viewed by clicking on the following link       http://vimeo.com/110741678

 

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