About Us

Formed in Melbourne in July 1989, the Rett Syndrome Association of Australia Inc. (RSAA) is a not-for-profit organisation which is managed by a Committee of volunteers, most of whom are parents of Rett syndrome children. July 2019 will mark RSAA’s 30th anniversary.

The Association seeks to improve the quality of life for persons with the syndrome and their families, and be of assistance to anyone interested in the disorder.